Friday, March 8, 2013

nightmares of meatballs

When at first try and try again. Well that does not work with Quinn. He only eats a few different thing and at first it was macaroni now its  meatballs. Meatballs for breakfast, meatballs for lunch and yes meatballs for dinner. I dream of them at night sometimes. I'm cooking them as I write this. And no I'm not joking. It's all OK because I can put lots of good things inside his meatballs. I blend up spinach and carrots and add them to the inside. We do not give him any more medication he was not tolerating it. So now we add some good cultural to his milk . The new vitamins are not working out,  he can not handle the taste. Quinn has found a new app that is bubble guppies and plays it for hours. Funny thing is he can not tolerate TV but watches this for hours. I don't understand this behavior but like everything else it will work itself out later. I've come to understand that I will not be able to understand everything he does and have accepted this. Not at gracefully as I would have liked but the key word is accepted.

Monday, November 5, 2012

TV , Music and a Autistic 3 year old


I tell myself evryday this is going to get better. Its not working yet. Quinn is unable to watch TV or hear any music. I have no idea what to do. We are now trying medication in which we said we would never do with him. I perplexed because even the developmental peditrition said she has never heard of such a problem. It all started 6 months ago with him not being able to tolerate certin parts in movies. Then in about 1 week he to scream when the music was on in the car. He used to love music. And one day he woke up unable to tolerate any TV or music. Funny thing is he loves to watch the band at church and any sort of live band. In fact he must be with in a foot of them playing. He sits and stems and make is elephant sound.

New Medicine for Brandon and Quinn


Quinn is on Gaficine 1/2 of 1 mg a day

We have not watched tv in months now due to Quinn inability to watch with out painfully screaming. It has gotten worse each day it seems.

 

Saturday, December 17, 2011

Brandon made the varsity track team!!!

When I use his high enery for things like track or football Brandon is much more managible at home. Well sometimes I find that there is talent in places I never thought to look. He is obessed about track. Yeah, it a healthy obsession. Whe have gotten rid of the xbox and that also helped minamize problems at home. Brandons mind works 110% on one thing at a time, but getting him away from his one thing is the problem. So if got rid of the problem there is no attactment disorder. The theripst says xbox is used on many children as a therapy. That is a joke, the  soul purpose of the xbox is to baby sit children while damanging there mind. Especialy children with autism and ADHD. Thats why he will never be going to the respite house. The special ed Peru districks has is a big joke also. He is not learning a thing because most of the children in his 15/1 classroom has sever behavior problems NOT a learning disability. I do not care right now because his special ability with psycial elements not academics. So we shall concentrat on this not is unabilty to learn as fast as others. He has come along way in comunication. This is a direct result of his psycial ability to do more that kids his age. They respect him for his talent in sports and seem to put a side his lack of knowledge. He was even asked to be in the talent show because he can create music with his hands flapping eachother. Who would have ever thought his hand flapping would actually impress others. At frist it was driving me crazy and if I got him to stop he would just pick up an other habit or tic. So I started to tell him how impressed I was with his hand flapping thing and guess what he has not picked his eyebrows or eyelashes out in months. So to wrap up the last few months He is amazing and special!!!

Thursday, September 15, 2011

Quinn's current diet and sleep cycle

Quinn's current diet is very limited. He loves pasta with spaghetti sauce as well as mac and cheese. He seems to not like baby food anymore. When he does eat it, he only eats the lasagna or spaghetti flavors. For breakfast he only eats yogurt. We change flavors and serve it both hot and cold and sometimes with baby rice to give him some variety. Quinn will eat crackers, cheetos and french fries but sometimes he just chews them and spits them out. On Fridays or Saturdays our family always has family movie night with pizza. Quinn knows what pizza is and asks for it very clearly. He eats one to two pieces and likes to dip them in ranch. Sometimes he will actually eat most of the piece of pizza and sometimes he will chew it, suck the ranch and sauce off of it and spit it out. His normal day is yogurt for breakfast and mac and chees or spaghetti for the other meals. He drinks about 40 ounces of milk for "snacks" thoughout the day. We have started to purchase gluten free products today and we mixed some almond milk in his bottles today to try and prepare him for the casein-free portion of his diet. Quinn's sleep habits have been unusual lately. He sleeps late, usually until 8 a.m. For the last four days he would not nap. He usually takes a two hour nap from about 1:30 to 3:30. Lately he had been skipping naps and now he will not take one at all. When Karla or I try to lay with him, he becomes extremely playful, almost to the point of becoming hyper active. When he finally appears to be falling asleep he seems to jerk himself out of it and begins to play again. In the evening he is becoming very sensitive and has cried the last two nights. We are thinking that having his own room with a twin bed would help. He still sleeps with us.

Wednesday, September 14, 2011

vitiams and diet

9-14-11 Quinn has finally seen a specialist last week and has been dignossed with Autism. This was not a suprise to me but I think it shcoked Nathan a little. We are also in the process of swicting from the early start program to the pre-school program for Quinn. During this process we have met a lady that is the school psyclogist and she has sugessed trying a diet that worked for her child. I am also trying timed release b-12 and Flax plus DHA which is omega -3-6-9 by finest natural Gluten and casein get a lot of attention in the autism community and from doctors in the Autism Research Institute's biomedical movement. Some parents, doctors and researchers say that children have shown mild to dramatic improvements in speech and/or behavior after these substances were removed from their diet. Some also report that their children have experienced fewer bouts of constipation and diarrhea since starting a gluten-free, casein-free (GFCF) diet. Author Karyn Seroussi says her son has no traces of autism, due in large part to a strict GFCF diet. Autism advocate Donna Williams, who has autism, says she has been helped by "nutritional supplements together with a dairy/gluten-free and low Salicylate diet." (Salicylates are found in some fruits likes apples and other foods). Some people report no benefits from the GFCF diet. Gluten and gluten-like proteins are found in wheat and other grains, including oats, rye, barley, bulgar, durum, kamut and spelt, and foods made from those grains. They are also found in food starches, semolina, couscous, malt, some vinegars, soy sauce, teriyaki sauce, flavorings, artificial colors and hydrolyzed vegetable proteins. Casein is a protein found in milk and foods containing milk, such as cheese, cream, butter, yogurt, ice cream, whey and even some brands of margarine. It also may be added to non-milk products such as soy cheese and hot dogs in the form of caseinate. There is growing interest in the link between autism and gastrointestinal (GI) ailments. A study by the University of California Davis Health System found that children with autism born in the 1990s were more likely to have gastrointestinal problems, including constipation, diarrhea and vomiting, than autistic children who were born in the early 1980s. Some people use the GFCF diet mainly to ease gastrointestinal problems and food allergies or sensitivities. According to one theory, some people with autism spectrum disorders cannot properly digest gluten and casein, which form peptides, or substances that act like opiates in their bodies. The peptides then alter the person's behavior, perceptions, and responses to his environment. Some scientists now believe that peptides trigger an unusual immune system response in certain people. Research in the U.S. and Europe has found peptides in the urine of a significant number of children with autism. A doctor can order a urinary peptide test to see if proteins are being digested properly. The GFCF diet has not gained widespread acceptance in the medical community yet. Studies of the diet have had mixed results. One recent study found behavioral improvements in children on a GFCF diet, while another study found no significant effects from the diet. A researcher at the New Jersey Medical School's Autism Center found that autistic children were more likely to have abnormal immune responses to milk, soy and wheat than typically-developing children, according to a chapter in Cutting-Edge Therapies for Autism 2011-2012. Medical tests can determine if your child has a sensitivity or allergy to gluten, casein, soy and other foods. Any pediatrician, or a physician from the Autism Research Institute list, can order these tests before you begin the diet. Before you change your child's diet, consult with a physician and nutritionist to make sure you are providing a healthy diet and, if necessary, nutritional supplements. Also, read any of the books and web sites about the diet (listed below). Some advocates of dietary intervention suggest removing one food from the diet at a time, so you will know which food was causing a problem. It also is helpful to ask people who do not know about the dietary change if they see any improvement after a few weeks. It's often suggested to remove milk first because the body will clear itself of milk/casein the quickest. Gluten may be removed a month after the elimination of milk. It may take up to six months on a gluten-free diet for the body to rid itself of all gluten. That is why most advocates suggest giving the diet a trial of six months. The diet can seem like a lot of work, at first. You must carefully read the ingredients on food packages. Beware of hidden casein and gluten in ingredient lists, such as curds, caseinate, lactose, bran, spices or certain types of vinegar. It may be hard to locate a substitute for the milk your child loves, although many children do adapt to the gluten-free, casein-free (GFCF) potato, almond and rice milk substitutes available. (Companies listed below). Look for varieties that are enriched with calcium and Vitamin D. In addition, many parents provide vitamin and calcium supplements to their children on the diet. Many communities have health food stores or regular supermarkets that sell flour, bread, crackers, cookies, pretzels, waffles, cereal, and pasta made of rice, potato or other gluten-free flours. There also are online retailers that sell GFCF foods and vitamins. Also, some web sites list commercially-available foods that are gluten-free and casein-free, such as Heinz ketchup, Bush's Baked Beans and Ore-Ida Golden Fries. Some prepared foods originally developed for people with Celiac Disease, a form of gluten intolerance, now come in casein-free varieties, too. To save money, some families choose to make their own GFCF foods using some of the cookbooks below. Foods that CAN be eaten on a gluten-free, casein-free diet include rice, quinoa, amaranth, potato, buckwheat flour, corn, fruits, oil, vegetables, beans, tapioca, meat, poultry, fish, shellfish, teff, nuts, eggs, and sorghum, among others. Besides gluten and casein, some parents report that removing corn or soy led to equal or greater improvements in their children. Because soy protein is similar to gluten and casein, some diet proponents recommend removing it if the child seems very sensitive or does not improve on the GFCF diet. Research into the GFCF diet continues. A study released in 2010 shows benefits for some kids with autism spectrum disorder. "Our results suggest that dietary intervention may positively affect developmental outcome for some children diagnosed with ASD," according to the study. It was published in Nutritional Neuroscience by a research group that included Paul Shattock and Dr. Paul Whiteley of ESPA Research. "Further studies are required to ascertain potential best- and non-responders to intervention." A new article by the same authors explores the ways a GFCF diet could reduce autism symptoms.

Monday, July 18, 2011

Quinn progress

Today we walked up the street holding your hands. His left foot is still turning out when we walk. He is still getting PT and ST twice a week. He still only eats baby food and mac and cheese with yourget in the morning. He loves playing with the hose and does not like his baths any more. He loves kisses and big hugs. He is talking more but not clear.He says I love you, outside and downstairs alot. He love to sing the wonder pets songs and twinkle twinkle little star.